How much should I drink?
You should drink at least 2 – 3 litres of fluid per day.
How can I avoid getting urinary infections?
By drinking lots of fluids, single use catheters and doing bladder wash outs.
How often do I need to do bladder wash outs?
At least once a week, but if you are suffering with a lot of mucus and urinary infections you should increase this to one a day.
How much saline do I need to use when doing wash outs?
About 150 – 200 mls per week.
Will I have to catheterize over night?
In most people, yes you will.
Difficulty in inserting catheter?
Try to relax your adbominal muscles, as the more you try they will tense, or try a couple of minutes later.
Try the next size down, if you can do this, tape the catheter in place and spigot the end and leave it in for a couple of hours.
Then try with the correct size, but if you cannot insert the catheter, call the hospital for advice.
I am still incontinent in between catheterisation?
If you have been dry, and you become incontinent again, this could show signs of infection, poor bladder emptying or a change in bladder behaviour.
Call the hospital for advice.
There is blood in my urine?
If it is a small amount do not worry, it is perfectly normal especially when just starting to catheterise, but if it increases seek advise from the hospital.
My Mitrofanoff is red, inflamed or bleeding?
Contact the GP or hospital.
My Mitrofanoff is sore and oozing?
Infection is quite common due insertion of foreign bodies.
Contact your GP or hospital.
Urine leaks from my Mitrofanoff?
Contact the hospital.
Will I need a special diet?
No, however you may find certain foods do not agree with you, therefore just cut them out.
When can I go back to work, after my operation?
After three months you should be ready to go back, but you must start off carefully. Do not go rushing straight into full time work, as your body will not be able to cope with it and you will be worn out.
Will it affect my sex life?
In men the prostate is removed, which sits directly below the bladder. In women there is a body of tissue between a small area of the bladder and vagina, which has shared blood supply. These organs and tissues do affect sexual function.
When can I start driving after my operation?
When your consultant tells you.
Will I be eligible for a blue disabled parking badge?
No, I’m afraid not.
Is it painful to catheterize?
My Mitrofanoff is very tight at skin level due to stenosis, therefore it is quite sore at skin level, but once the catheter is in the Mitrofanoff, it just slides in and out. However it is quite painful when I have infections.
Is a bladder wash out painful?
Personaly no, it feels a little strange, but it does not hurt.
Do you get bladder spasms?
Yes, I find I get them a lot.
Catheterization problems due to weight gain / loss?
This has happen to me, but only once.
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