Mitrofanoff Support was founded in early 2010 by Kyla Rogers. Mitrofanoff Support's aim is to offer support and reassurance to anyone who may be about to have, or anyone who already has a Mitrofanoff, and of course their nearest and dearest. It is also to help raise awareness of what it is like to have a Mitrofanoff and what it means to live with it. We work closely with medical professionals to help them understand what it is like to live with a Mitrofanoff.
Meet The Board
Kyla Rogers (Hooper) - Chief Executive Officer / Founder
Kyla Rogers founded Mitrofanoff Support in early 2010. Kyla is the Chief Executive Officer and is extremely passionate about the charity.
Kyla was born with bladder exstrophy along with class v uterine. Kyla had the Mitrofanoff procedure in 1998 aged 16. If you wish to read more, then please click here to see Kyla's Case Study
Kyla is responsible for management leadership, generating funds through varied methods, marketing the charity and its services, plans and organises events, presents on behalf of the charity at other conferences to promote Mitrofanoff Support, as well as being interactive with members.
Kyla is a trustee for The Bournemouth Council for Voluntary Service and is also an Ambassador for Education and Resources for Improving Childhood Continence.
Dan Wood - Patron
Dan Wood is a Consultant Urologist in Adolescent and Reconstructive Surgery at The University College London Hospital. After gaining a sound background in general urological practice, he developed an interest in reconstructive urology. He has worked in the fields of female and pelvic reconstruction, urethroplasty and artificial urinary sphincters, paediatric urology and surgery for congenital malformations, as well as adolescent urology. He currently performs a wide range of procedures in urological reconstruction and adolescent urology.
Mitrofanoff Support is extremely proud to have Dan Wood as our Patron. Dan attends all of the patient education days and he is very much in favour of the modern peer to peer approach of Mitrofanoff Support.
Dan Wood – “ I am honoured to have been asked to become Patron of Mitrofanoff Support and I am happy to be so until further notice”.
Professor Christopher Woodhouse - Medical Ambassador
Professor Woodhouse is a Consultant Urologist at The Royal Marsden Hospital who specialises in Urinary Tract Cancer, Reconstructive and Congenital Malformations. He became a Urological surgeon in 1970 and was a senior registrar at the Institute of Urology from 1977 - 1981 and a senior lecturer between 1981 - 1997. He has been a Clinical Director of Urology at The University College London Hospital since 2001 and became a Professor in 2006.
Professor Woodhouse has great experience and expertise’s with the Mitrofanoff and was the first Urologist to perform the Mitrofanoff in the United Kingdom in the early 1980's.
Mitrofanoff Support is honoured to have Professor Woodhouse as Medical Ambassador of the charity and is very much looking forward to working along side him.
Professor Woodhouse - "I am really looking forward to it."
Sharon Fillingham - Nurse Advisor / Trustee
Sharon Fillingham is a Clinical Nurse Specialist and has many years of experience and expertise within the Urology and Urinary Diversions.
Sharon gives lectures and holds training days to teach other medical professionals across Europe on the Mitrofanoff procedure. Sharon is also qualified and works as a Psychosexual Therapist.
Mitrofanoff Support is very lucky to have Sharon as our Nurse Advisor and on our management board. Sharon is also involved in all our patient education days and has worked closely with Mitrofanoff Support since its launch in 2010.
If you have any questions for Sharon, please go through Kyla Rogers.
Natalie Sloan - Chair / Secretary / Trustee
Natalie Sloan is a PA of an Intellectual Property company. In November 2008 Natalie's mother was diagnosed with CIS bladder cancer. After failing treatment she underwent a Radical Cystectomy with the Mitrofanoff procedure in July 2009. Natalie supported her mother from the initial diagnosis and experienced all her mothers highs and lows with her as her daughter and her carer.
As Natalie has seen her mothers confidence gradually grow along with the help of Mitrofanoff Support. Natalie now supports other people through these lonely, difficult times and aims to help Mitrofanoff Support move forward with awareness.
Natalie is responsible for the administration of Mitrofanoff Support, working in partnership with the Chief Executive to help achieve the charity's aims, chairing and facilitating board meetings, maintaining effective records and organisation, communication and correspondence, upholding legal requirements, supporting The Board of Trustees, managing the main email account and interacting with members.
Kenneth Edwards - Vice Chair / Trustee
Ken was diagnosed with bowel cancer which spread to his prostate. In 2007 he received chemo and radio therapy which lead onto major surgery the following year. This surgery entailed an A.P resection / En bloc / Total Proctocolectomy / Mitrofanoff / Vram flap reconstruction of Perineum. Leaving Ken with a Colostomy and Mitrofanoff. Following his surgery he was concered about the lack of support and awearness for like minded people until he met Kyla Rogers and has been a member of Mitrofanoff Support since 2010.
Ken has been involved with civic and voluntary affairs for a number of years, serving on and chairing many committee's. He is also vice president of the local MS branch having purchased an ambulance/bus during his many years as Mayor of Salisbury. Ken is also chairman of the Wessex Stoma Support Group.
Ken is passionate about the Mitrofanoff procedure, although knowing the complications aswell as the advantages.
Gobi Ranganathan - Patient Ambassador
Gobi Ranganathan works for Shine as a Member Development Officer. Shine supports people with Spina Bifida and Hydrocephalus and concentrates on information, networking and equality.
Gobi is a disabled sportsman from Stevenage. Despite having Spina Bifida and enduring 23 corrective surgeries and had the Mitrofanoff procedure in 1995. Gobi also had a six month stay in hospital in 2005, he has been able to overcome his disability through determination and hard work. He is a primarily wheelchair user and very independent.
Katie Dutton - Patient Ambassador
Katie Dutton is a trusted member of Mitrofanoff Support and has been involved with the charity from the offset. She had the Mitrofanoff procedure in 2011, after living from childhood with acute urinary tract infections and complete urinary retention in recent years.
Katie has found the charity a lifeline during times of difficulty, after her operation was not as straight forward as she hoped. She now spends her spare time giving back to the charity in as many ways as possible, and loves being able to help others the same way she was helped.
Katie hopes to be able to work closely with the board, and help both with education and support for patients and healthcare professionals.