A warm welcome to Mitrofanoff Support
Whether you are someone with bladder problems, are a family member, a carer or have a friend with this condition Mitrofanoff Support is here to help you with any questions, queries or concerns.
Bladder problems are not a subject that is openly discussed, hence there is a general lack of public knowledge on what it is like to have a Mitrofanoff. We offer support and reassurance to anyone who may be about to have, or already has a Mitrofanoff and the people closest to them. This is because we felt there was not enough support and guidance out there for people with Mitrofanoffs.
Mitrofanoff Supports primary role is to represent the interests of people with a Mitrofanoff, as we are experts in living with one. The overriding aim is to raise awareness of what it is like to have a Mitrofanoff and what it means to live with it. By doing this, we hope to address the general lack of public knowledge present and future.
Patient Education Day with Paul Mitrofanoff
28th September 2013