A warm welcome to Mitrofanoff Support

Whether you are someone with a Bladder Defect, are a family member, a carer or have a friend with this condition mitrofanoffsupport.co.uk is here to help you with any questions, queries or concerns. 

Bladder defects are not a subject that is openly discussed. Hence there is a general lack of public knowledge on what it is like to have a Mitrofanoff. I offer support and reassurance to anyone who may be about to have, or already has a Mitrofanoff and the people closest to them. This is because I felt there was not enough support and guidance out there for adults with Mitrofanoffs.

My primary role is to represent the interests of people with a Mitrofanoff, as I am an expert in living with one. My overriding aim is to raise awareness of what it is like to have a Mitrofanoff and what it means to live with it. By doing this, I hope to address the general lack of public knowledge present and future.